A Pontarddulais family is set to 'glow up' for a children's hospice's spooky fun run.
The family, from Hendy, are preparing to take part in Tŷ Hafan Children's Hospice's West Wales Dark Run at the National Botanic Garden of Wales.
The family, who have been supported by the hospice for more than four years, are keen to raise awareness and funds for the charity.
Aimee Davies, mum to Cameron Fulham, 13, and Anwen Davies, seven, said: "We’ve been supported by Tŷ Hafan for four and a half years now.
"We were struggling during lockdown and I don’t think we would have coped without the support that you give us.
"Tŷ Hafan is a lifeline to us."
Cameron was born with Joubert Syndrome, a rare genetic condition that affects only around 600 people worldwide.
This condition means the cerebellum area of his brain is underdeveloped, resulting in him being non-verbal, unable to walk, and having some developmental delays.
The family are now gearing up to take part in the first-ever National Botanic Garden of Wales sponsored Dark Run on Saturday, November 2.
Ms Davies said: "The Dark Run for Tŷ Hafan at the National Botanic Garden of Wales is a great thing for people to get together and have some fun.
"But also it raises awareness about what Tŷ Hafan does, and it also raises money for the hospice which is vital.
"Me and Cameron are looking forward to firing the starting pistol on the night itself and then doing as much of the course ourselves as we can.
"I haven’t got a clue yet as to what we will wear.
"I’ll probably get a lot of glow sticks and decorate Cameron’s wheelchair with them.
"I'll have to have a chat with Cameron about this soon and get on to it."
The family also praised the support provided by Tŷ Hafan to Anwen, who has autism and is a young carer for Cameron.
Ms Davies said: "It isn’t just Cameron who is supported by Tŷ Hafan.
"Anwen goes to the Stay and Play Hubs which Tŷ Hafan run locally.
"She has already built up a really nice bond with the play team at the hospice.
"It’s so nice for her to be able to switch off a bit."
James Davies-Hale, head of fundraising at Tŷ Hafan, said: "National Botanic Garden of Wales Dark Run is a brilliant opportunity for family and friends to get dressed up, get together and have a great evening out while raising vital funds for a great cause.
"The Garden will be lit up for this event and fancy dress is optional, but strongly encouraged.
"Think bright neon colours and Halloween dress up and we’ll be giving a prize for the best costume.
"Run, jog or walk this epic 2.5k spooky fun run which is kindly sponsored by Family Fostering Partners.
"It's up to you how you do it."
Each family or group is asked to raise a minimum of £50 in sponsorship.
Sponsorship forms can be downloaded from the Tŷ Hafan website and everyone who takes part will get a free large glowstick and a glow-in-the-dark medal.
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